Revised and new resources to support transition to adult services

Together for Short Lives is pleased to launch the new edition of Stepping Up. This is a resource setting out standards for good quality support for young people with life-limiting conditions across the three phases of transition: preparing for transition, during the transfer and when settling into adult services. 

The updated Pathway has a greater focus on the role of adult services in supporting transition. This was developed in collaboration with Hospice UK, capturing learning from their Transition ECHO project.  This new edition also gives practice examples of how joined up working has been achieved in a variety of service examples. 

Stepping Up can be used as framework to develop services for young people and ensure that high quality care is provided for young people with life-limiting conditions. These include standards and goals that can be used as an audit tool to identify areas for service development and for the development of local pathways that will engage with services available locally.

One key element of achieving a good transition is for parents/carers to be well prepared for the changes that happen when their child reaches adulthood and informed about how to navigate the many services that need to be joined up.  

Our new booklet can help them to achieve this. 

Individual copies of the publications can be downloaded or ordered by clicking on the links below. If you would like multiple copies of either resource, please email info@togetherforshortlives.org.uk.

Transition to Adult Services: A Guide for Parents

Stepping Up: Transition to Adult Services Pathway