Young Epilepsy

Young Epilepsy is a national charity that supports the 112,000 children and young people under 25 with epilepsy in the UK.

There is a huge demand for information and support for parents and professionals and a need to improve access to, and quality of, health and education services.

We have a range of services including our helpline, health information resources, training courses for professionals in health, social care and education and the promotion of good practice in schools.

At our youth clubs, we aim to enhance the self-esteem, self-confidence, and overall well-being of children and young people living with epilepsy, offering a safe and welcoming space where you can thrive.

Why join?

• Connect with young people with epilepsy, in a safe space.
• Develop social skills and make new friends along the way!

Choice of sessions:

• Ages 10-12
• Ages 13+

Support Service

Youth support coordinators provide one-to-one guidance, whole-family support and social get-togethers for children and young people up to the age of 25 with epilepsy, and their families. The support offered includes:

• Giving a young person a safe space to speak.
• Informing young people of their rights.
• Creating a community for young people, to meet others with the condition and share their stories.
• Empowering young people to improve their outlook on living with epilepsy, building their resilience, confidence and independence.
• Helping children and young people manage their wellbeing and mental health, signposting them to the help they need.

Use this link to access the referral form

More information and register

For those in distress or requiring urgent support, Young Epilepsy has partnered with Shout to offer free, confidential, 24/7 text support to young people and families living with epilepsy. To start a conversation, text ‘PURPLE’ to 85258.