Nystagmus Network is a charity that helps people with nystagmus, a condition where the eyes move uncontrollably. They offer many services to support families and children with nystagmus.

Support Services

For brothers and sisters of disabled children and adults

Sibs is a UK charity for siblings who may be finding it hard to cope with a brother or sister who is disabled, has special educational needs or a serious long term condition.

It is the only UK charity representing the needs of over half a million young siblings and over one and a half million adult siblings.

Sibs can give information and advice both over the phone and online. Sibs also runs YoungSibs, an online only support service for siblings in the UK aged 7 to 17. 

Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them.

We support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.

Are you aged 18-25 and looking after someone who needs help and support? 

If you are caring for someone who cannot manage without your support and you're not employed to do this, then you are a young adult carer. Anyone can become a carer at any point in their life. We're here to listen and support you.

The North East Autism Society run a Family Networking Group, a closed group on Facebook which aims to empower, educate and connect parents, families and carers by: 

• Increasing knowledge

• Sharing useful information 

• Connecting people   

You can find out more here: Family Networking - North East Autism Society

Contact is the UK charity for families with disabled children. They support families, bring families together and help families take action for others. They give support through: