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PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.
One estimate suggests that up to 1 in 200 children suffer from this condition.
Education and Services for People with Autism Limited is a Registered Charity with over 24 years’ experience of supporting people on the autism spectrum.
ESPA’s services include:
We care for children and young adults with progressive, life shortening conditions from across the North East.
Our team of skilled staff provide residential short breaks to local families. Up to six children and young adults can stay at any one time in our relaxed, home-from-home environment.
Children from birth to 18 can benefit from short breaks here. Teenagers benefit from their own living area – complete with games consoles, wide screen TV and PC’s.
We also care for young adults aged 18- 25 in designated, age-appropriate facilities.
St Cuthberts Care is a leading North East charity providing specialised services for some of the most vulnerable members of our communities. Our work is often focused on providing services which fill the gaps left by other providers who find our areas of work unattractive or too high risk. We focus largely on:
- Residential care for children
- Short-term and long-term fostering
- Specialist provision for people with profound disabilities
- Care for older people
- Care for adults with learning disabilities
- Community services
In 1976, armed with a single phone in a rented office, Dimensions began supporting people with learning disabilities, autism and complex needs out of institutions, helping them lead ordinary lives in their local communities.
Forty years on, our work is fundamentally unchanged: we support people with learning disabilities and autistic people to have a louder voice, choice and control in their lives. Our 7000 colleagues deliver ambitious, effective, personalised support often with those whose previous support has not been successful.
Our five Auton residential children's homes can be found in Newcastle, Sunderland and Darlington. Each home offers professional care and a stable environment for young people aged between seven and 17 who are unable to live with their own families.
For more information, visit our website www.autonresidentialchildcare.org.uk
Situated within the Alan Shearer Centre, our specialist home offers residential accommodation for adults with profound and multiple disabilities, offering longer term, safe and nurturing care and support. In addition, our disabled residents have full access to the on-site Activity Centre.
Family Fund supports families living across the UK who are who are raising a disabled or seriously ill child or young person up to the age of 17. Our support is focused on those on low incomes with a child/children who have a high level of additional support needs.
At Family Fund, we believe that all families raising disabled or seriously ill children and young people should have the same choices, quality of life, opportunities and aspirations as other families.
Children Today helps provide specialised equipment for children and young people with disabilities throughout the UK. The aim is to ensure that every disabled child and young person fulfils their potential and leads an active childhood.
We believe the provision of specialised equipment has a direct and immediate impact on a child’s quality of life and independence, and is vital in helping them to overcome obstacles and achieve their potential. Equipment can include wheelchairs, walking frames, tricycles and other mobility aids along with multi-sensory equipment.
The Access Fund is a grant to help disabled children and young people to participate in activities in their local community. This can be any daytime, evening or weekend activity that the child or young person enjoys whilst their parent/carer has a break from caring. The Access Fund seeks to support children and young people to take part in inclusive activities alongside their non- disabled peers.
Max Card is issued by North East Local Authority specialist teams to children in care, and children and young people with additional needs.
Max Card offers these children and their families or carers free or discounted entry into many museums, galleries and heritage attractions across the North East.
Just show your Max Card at the entrance and you will get in for free or at the Max Card discounted rate – see the venues page for a full list of venues offering discounts.
Rays of Sunshine Children's Charity exists to grant the wishes of children who are living with serious or life-threatening illnesses between the ages of 3-18 who live in the United Kingdom.
Our dedicated wish team responds to all wish applications within two weeks. We do not operate a waiting list, but give every wish our immediate attention.
With your help they and their families can experience the joy and excitement of doing something they've only ever dreamt of before.
Help us turn wishes into happy memories.
Disability North is a registered charity (no. 514733) promoting inclusion, independence and choice for disabled people and their families by providing information, advice and support on any aspect of disability. Services are also provided for students or professionals working in the statutory, voluntary and the public sector.
Provides dental care for pre-school children, school children, those with special needs, learning disabilities, medical problems or severe anxiety and any other clients who are unable to find a dentist.
Clinics are available at Arthur's Hill Clinic (check website), Kenton Health Centre, Molineux Street NHS Centre and Walker Centre. You can contact the service directly.
The community dental department provides a full range of dental treatment for patients who are residents of Newcastle and who fit one or more of the following criteria:
At any given time up to 40% of adults and 50% of children (this rises to 80% with a SEND diagnosis) have difficulties with their sleep.
Yet in a recent survey, almost 60% of adults felt there was a lack of support for sleep issues.
Sleep problems can leave people feeling isolated and lonely.
Our free helpline is run by trained sleep advisors, many of whom are specialists in working with SEND. We can talk to young people directly, or parents (we can also talk to adults, including older people, about their sleep issues).
The children and young people’s clinic cares for children and young people with a range of genital conditions. We also see children and young people with concerns about sexual abuse.
Children and young people can be referred to our care by their GP or a doctor from another hospital. The Police or Children’s Services also refer children and young people to our service.
We are one of only two centres in the UK dedicated to treating children with immune system deficiencies.
Our pioneering new treatments enable children to lead normal, healthy lives free of all medication.
Part of the children’s immunology service, we are recognised as one of the leading clinical research units in Europe for children’s immunology and infectious diseases.
This includes Severe Combined Immune Deficiency Syndrome (SCIDS) and bone marrow transplants.
The children and young people’s haematology and oncology service, cares for children and young people under the age of 21 who have cancer, leukaemia and other related diseases.
Our department is one of the largest, most advanced in the UK, providing a comprehensive range of leading edge oncology services, including chemotherapy, radiotherapy and surgery.
We are the Regional Treatment Centre for all of the Northern region, treating patients from Teesside to Newcastle, and Northumberland to Cumbria.
Our children’s community nursing service provides specialist care for children and young people up to the age of 19 years.
We aim to help you and your child to lead a fulfilling everyday life. We work to keep hospital admissions to a minimum by providing modern nursing care and support for your child and family in your own home.
This can include:
The children’s dentistry team provide specialist oral healthcare for children from birth to sixteen years of age.
Children and young people need different approaches to improve their oral health: We
Newcastle’s children’s emergency department (A&E) is at the Royal Victoria Infirmary
We have a specially designed area for children and young people who need immediate care for every kind of injury and illness you can think of.
The children’s ear, nose and throat (ENT) service is for young patients, from newborn to 16 years old.
Conditions we treat
We provide services to treat common childhood ENT complaints such as:
- persistently runny or blocked noses
- breathing problems
- throat infections
- nasal speech
- snoring.
This might include procedures such as:
We are a registered charity set up in 1990 in Newcastle upon Tyne, at a time when the North East had the worst levels of child health in the country (Government report Health of the Nation 1990).
Our children’s gastroenterology and nutrition unit cares for children with disorders of the gut, liver and pancreas, as well as children with nutritional problems.
Based at the Great North Children’s Hospital, our team includes:
- expert consultants
- specialist dieticians
- paediatric pharmacists
- highly-trained paediatric nurses.
We provide a wide range of diagnostic and treatment services for children from across northern England.
CHIPS is a specialist service designed to provide expert palliative care support for babies, children and young people with serious and life-threatening conditions and their families.
The service works alongside the other clinical teams who are caring for them.
CHIPS is a regional service supporting babies, children and young people across the North East and north Cumbria.