Nystagmus Network is a charity that helps people with nystagmus, a condition where the eyes move uncontrollably. They offer many services to support families and children with nystagmus.

Support Services

Inclusion North promotes the inclusion of people with learning disabilities, their families and carers.

The world is a better place when people with learning disabilities are included in everything.

We try to make this happen by:

For brothers and sisters of disabled children and adults

Sibs is a UK charity for siblings who may be finding it hard to cope with a brother or sister who is disabled, has special educational needs or a serious long term condition.

It is the only UK charity representing the needs of over half a million young siblings and over one and a half million adult siblings.

Sibs can give information and advice both over the phone and online. Sibs also runs YoungSibs, an online only support service for siblings in the UK aged 7 to 17. 

Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them.

We support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.

This Facebook group is for local parents of disabled children and young people.  Once you join you can ask other parents about problems you are having and where to get help and share your experiences with one another. 

This page also provides information on activities happening locally including coffee mornings and drop in events.

To find out what is happening, check out the flyers featured on their Facebook group and socials:

The Access Fund is a grant scheme. It can help children and young people with educational needs and/or disabilities take part in activities within their community alongside their non-disabled peers. It can help with the cost of taking part in local activities. This may include but is not limited to sporting, performing arts, or recreational activities.

Who is eligible to apply? 

Are you aged 18-25 and looking after someone who needs help and support? 

If you are caring for someone who cannot manage without your support and you're not employed to do this, then you are a young adult carer. Anyone can become a carer at any point in their life. We're here to listen and support you.

Our Story

Daisy Chain provides a range of support services to autistic children and adults, either with a diagnosis or who are undergoing the diagnostic process, their parents/carers and their siblings.

Daisy Chain began life in 2003 as the dream of its founder, Lesley Hanson, whose son Jacob was diagnosed as autistic at an early age.

Youth Link Newcastle is for young people living with a disability or additional needs. It matches young people to a peer mentor.  They can help with working towards a goal and overcoming challenges. 

The service is available to young people living in a Newcastle Postcode, aged from 11 to 18.

Some examples of how a peer mentor could help you include:

For parents/carers of children who are on the diagnostic pathway or post diagnosis of Autism.

Children must be living in Newcastle.

Supporting your autistic child workshop

These sessions will cover:

• worries and action planning

• common misconceptions

• differences in autistic children

• practical strategies to use in everyday life

These sessions will run 10-12 and must be pre-booked.

Run by the NSPCC, Childline is a free, private and confidential service where children and young people under the age of 19.  This includes those with additional needs or disabilities.  You can talk to a counsellor about any issue they’re facing.

Online, on the phone, anytime.

Newcastle Parent Carer Forum (PCF) are a group of volunteer parents and carers who work in partnership with Newcastle Local Authority, Health, Education and Social Care providers to make sure that the services they deliver meet the needs of children, young people and their families.

We aim to act as “the voice” of Newcastle’s parents and carers of children and young people with Special Educational Needs and Disabilities (SEND).

Serving hot breakfasts, lunchtime favourites and top-quality coffee. Cafe Hope Cowgate is a place for families and people from the local community to enjoy affordable meals in a friendly space. Based at our Cowgate Centre site, its profits help keep our life-changing services accessible to babies, children, young people and their families.

The North East Autism Society run a Family Networking Group, a closed group on Facebook which aims to empower, educate and connect parents, families and carers by: 

• Increasing knowledge

• Sharing useful information 

• Connecting people   

You can find out more here: Family Networking - North East Autism Society

EarlyBird is a course for parents who have a child under 5 with a diagnosis of autism. It is a 10-week course consisting of 8 face to face group sessions and 2 home visits.

The programme aims to support parents post diagnosis and establish good practice in supporting their child at an early age.

Does your child have a special educational need or disability?

Come to our support group. It’s a friendly place for parents and carers to chat and get advice.

• Get advice from professionals.

• Talk to other parents and carers.

• Share ideas.

This group meets on the first Monday of every month. 

No need to book - just turn up.

For parent and carers we host a weekly Coffee Morning every Thursday between 9.30 – 11.30am, (term-time only).  Our coffee mornings provide an opportunity for parents to chat to other families and mutually support each other.  

Coffee Morning refreshments are provided free of charge.

Families with pre-school or home educated children are welcome to bring your child(ren) with you, but please be aware they remain your responsibility at all times.

A course to help parents/carers manage the behaviour of people with learning disabilities and/or autism. It will help you understand their behaviour and ways to support them.

Find out more about Positive Behaviour Support here: Positive Behavioural Support

For more information about this course, call 0191 281 8737 or email information@skillsforpeople.org.uk. 

NEAS Newcastle Autism Hubs are a supportive environment for parents and carers of autistic children. Currently these hubs offer:

• one-to-one sessions where families can discuss any issues in confidence

• workshops designed to help parents understand and support their autistic children. 

The workshops cover topics such as common misconceptions, differences in autistic children, and practical strategies for everyday life.

Contact is the UK charity for families with disabled children. They support families, bring families together and help families take action for others. They give support through:

Do you have an autistic child (with or without diagnosis) and need support? Do you live in Newcastle?

As part of the Autism Central programme, Daisy Chain provides a range of in-person learning workshops. These cover many different topics to help support individuals and families.

A friendly and welcoming monthly support group. For parents and carers of children with a special educational need or disability.

• Chat to other parents and carers

• Get advice from professionals

• Share ideas and strategies 

No need to book. Just turn up!

Dates

A group for parents and carers of children aged 2 to 5.

This group will help you:

• understand autism

• learn strategies to support your child's development

• focus on play and sensory development

• maintain routines and boundaries

• learn how to support your child with language and social skills 

There are 12 sessions every Thursday starting on 11th September 2025. Sessions will take place at Byker Sands Family Hub.

For more information or to book: