Family Fund supports families living across the UK who are who are raising a disabled or seriously ill child or young person up to the age of 17. Our support is focused on those on low incomes with a child/children who have a high level of additional support needs.

At Family Fund, we believe that all families raising disabled or seriously ill children and young people should have the same choices, quality of life, opportunities and aspirations as other families.

Nystagmus Network is a charity that helps people with nystagmus, a condition where the eyes move uncontrollably. They offer many services to support families and children with nystagmus.

Support Services

Today, 10 children and young people in the UK will hear the shocking news that they have cancer.

Treatment normally starts immediately, is often given many miles from home and can last for up to three years. Being diagnosed with cancer is a frightening experience and the emotional, practical and financial implications of treatment are intensely challenging for the whole family.

We aim to raise awareness and make sure D/deaf, Deafblind and Hard of Hearing people have access to information and services in the same way as hearing people.  We provide information and signposting for deaf-related services. 

Deaflink has developed as an organisation with the principles of inclusion and empowerment, trying to bring people and agencies in partnership to understand better the needs and issues of D/deaf, Deafblind and Hard of Hearing people.

Charity number 1147237

For brothers and sisters of disabled children and adults

Sibs is a UK charity for siblings who may be finding it hard to cope with a brother or sister who is disabled, has special educational needs or a serious long term condition.

It is the only UK charity representing the needs of over half a million young siblings and over one and a half million adult siblings.

Sibs can give information and advice both over the phone and online. Sibs also runs YoungSibs, an online only support service for siblings in the UK aged 7 to 17. 

Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them.

We support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.

We are a Community Interest Company (non profit organisation), providing a range of services in the North East around Deaf and Hearing Impairment. We consult Forum Members for advice and guidance on different projects and issues.

Deaf and hearing working together in Tyne and Wear, breaking down the barriers that Deaf or hearing impaired people face in our society. This includes training, British Sign Language (BSL) interpretation, Support and general advice and guidance.

About Arthritis Action

Founded in 1942, Arthritis Action is the only UK charity giving hands-on, practical help to combat the pain of arthritis through self-management and lifestyle advice. We offer people with arthritis a holistic self-management approach, looking at both the physical and mental aspects of arthritis.

The Autism Education Trust (AET) was set up in part by the National Autistic Society. Recognised by the Department of Education, it provides high quality training to schools and educational settings.

From September 2020 Newcastle City Council is an Autism Education Trust (AET) Training Hub.

Young Epilepsy is a national charity that supports the 112,000 children and young people under 25 with epilepsy in the UK.

There is a huge demand for information and support for parents and professionals and a need to improve access to, and quality of, health and education services.

We have a range of services including our helpline, health information resources, training courses for professionals in health, social care and education and the promotion of good practice in schools.

Masquer-Aid is a programme for young people aged 11-25 who have recently found out they are neurodivergent or are waiting for a diagnosis. They will take part in a 12-week programme where they learn about what it means to be neurodivergent and talk about shared experiences.

Youth Link Newcastle is for young people living with a disability or additional needs. It matches young people to a peer mentor.  They can help with working towards a goal and overcoming challenges. 

The service is available to young people living in a Newcastle Postcode, aged from 11 to 18.

Some examples of how a peer mentor could help you include:

The North East Autism Society run a Family Networking Group, a closed group on Facebook which aims to empower, educate and connect parents, families and carers by: 

• Increasing knowledge

• Sharing useful information 

• Connecting people   

You can find out more here: Family Networking - North East Autism Society