Nystagmus Network is a charity that helps people with nystagmus, a condition where the eyes move uncontrollably. They offer many services to support families and children with nystagmus.

Support Services

We aim to raise awareness and make sure D/deaf, Deafblind and Hard of Hearing people have access to information and services in the same way as hearing people.  We provide information and signposting for deaf-related services. 

Deaflink has developed as an organisation with the principles of inclusion and empowerment, trying to bring people and agencies in partnership to understand better the needs and issues of D/deaf, Deafblind and Hard of Hearing people.

Charity number 1147237

For brothers and sisters of disabled children and adults

Sibs is a UK charity for siblings who may be finding it hard to cope with a brother or sister who is disabled, has special educational needs or a serious long term condition.

It is the only UK charity representing the needs of over half a million young siblings and over one and a half million adult siblings.

Sibs can give information and advice both over the phone and online. Sibs also runs YoungSibs, an online only support service for siblings in the UK aged 7 to 17. 

Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them.

We support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.

We are a Community Interest Company (non profit organisation), providing a range of services in the North East around Deaf and Hearing Impairment. We consult Forum Members for advice and guidance on different projects and issues.

Deaf and hearing working together in Tyne and Wear, breaking down the barriers that Deaf or hearing impaired people face in our society. This includes training, British Sign Language (BSL) interpretation, Support and general advice and guidance.

Young Epilepsy is a national charity that supports the 112,000 children and young people under 25 with epilepsy in the UK.

There is a huge demand for information and support for parents and professionals and a need to improve access to, and quality of, health and education services.

We have a range of services including our helpline, health information resources, training courses for professionals in health, social care and education and the promotion of good practice in schools.

Youth Link Newcastle is for young people living with a disability or additional needs. It matches young people to a peer mentor.  They can help with working towards a goal and overcoming challenges. 

The service is available to young people living in a Newcastle Postcode, aged from 11 to 18.

Some examples of how a peer mentor could help you include:

Useful Vision is a service for visually impaired children around the North East. We provide positive opportunities and jam-packed events. Our support for children and families helps them to flourish.

Our activities and services can help children learn new skills and make new friends – reducing social isolation through increased confidence and self-esteem.

You can register your child for support from Useful Vision and to be able to attend events. 

Contact is the UK charity for families with disabled children. They support families, bring families together and help families take action for others. They give support through: