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The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.
Online support for Parents / Carers and Parents to be to;
- Understanding your pregnancy, birth and labour
- Understanding your baby
- Understanding Your Child
Go to www.inourplace.co.uk
If you have trouble accessing the website please contact solihull.approach-parenting@heartofenglandnhs.uk 0121 296 4448 Monday – Friday 9am – 5pm
Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them.
We support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.
Young Epilepsy is a national charity that supports the 112,000 children and young people under 25 with epilepsy in the UK.
There is a huge demand for information and support for parents and professionals and a need to improve access to, and quality of, health and education services.
We have a range of services including our helpline, health information resources, training courses for professionals in health, social care and education and the promotion of good practice in schools.