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The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.
For brothers and sisters of disabled children and adults
Sibs is a UK charity for siblings who may be finding it hard to cope with a brother or sister who is disabled, has special educational needs or a serious long term condition.
It is the only UK charity representing the needs of over half a million young siblings and over one and a half million adult siblings.
Sibs can give information and advice both over the phone and online. Sibs also runs YoungSibs, an online only support service for siblings in the UK aged 7 to 17.
Online support for Parents / Carers and Parents to be to;
- Understanding your pregnancy, birth and labour
- Understanding your baby
- Understanding Your Child
Go to www.inourplace.co.uk
If you have trouble accessing the website please contact solihull.approach-parenting@heartofenglandnhs.uk 0121 296 4448 Monday – Friday 9am – 5pm
Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them.
We support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.
Young Epilepsy is a national charity that supports the 112,000 children and young people under 25 with epilepsy in the UK.
There is a huge demand for information and support for parents and professionals and a need to improve access to, and quality of, health and education services.
We have a range of services including our helpline, health information resources, training courses for professionals in health, social care and education and the promotion of good practice in schools.
A Specialist service for people who's lives are affected by someone else's alcohol or drug use. PROPS can offer one to one work, peer support groups, and training around substance misuse. They also offer carer and family training, respite breaks and an emergency out of hours telephone helpline. PROPS also work with young people 11+ who have been impacted by someone else’s drug or alcohol misuse.
If you know anyone who may be affected by drug or alcohol misuse, please contact us to make a referral or alternatively we would be happy to discuss this further with you.
The Humankind LGBT North East Services provide support to young people aged 11 to 25 through a range of projects across the North East region.
LGBT+ (Lesbian, Gay Bisexual or Transgender or other related identities) specialist support includes one to one interventions, workshops, peer support and family work.
Are you aged 18-25 and looking after someone who needs help and support?
If you are caring for someone who cannot manage without your support and you're not employed to do this, then you are a young adult carer. Anyone can become a carer at any point in their life. We're here to listen and support you.
Masquer-Aid is a programme for young people aged 11-25 who have recently found out they are neurodivergent or are waiting for a diagnosis. They will take part in a 12-week programme where they learn about what it means to be neurodivergent and talk about shared experiences.
The North East Autism Society run a Family Networking Group, a closed group on Facebook which aims to empower, educate and connect parents, families and carers by:
- Increasing knowledge
- Sharing useful information
- Connecting people
You can find out more and join the group here on the website:
www.ne-as.org.uk/family-networking
Does your child have a special educational need or disability?
Come to our support group. It’s a friendly place for parents and carers to chat and get advice.
- Get advice from professionals.
- Talk to other parents and carers.
- Share ideas.