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For brothers and sisters of disabled children and adults
Sibs is a UK charity for siblings who may be finding it hard to cope with a brother or sister who is disabled, has special educational needs or a serious long term condition.
It is the only UK charity representing the needs of over half a million young siblings and over one and a half million adult siblings.
Sibs can give information and advice both over the phone and online. Sibs also runs YoungSibs, an online only support service for siblings in the UK aged 7 to 17.
Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them.
We support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.
PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.
One estimate suggests that up to 1 in 200 children suffer from this condition.
This Facebook group is for local parents of disabled children and young people. Once you join you can ask other parents about problems you are having and where to get help and share your experiences with one another.
This page also provides information on activities happening locally including coffee mornings and drop in events.
To find out what is happening, check out the flyers featured on their Facebook group and socials:
We are a Community Interest Company (non profit organisation), providing a range of services in the North East around Deaf and Hearing Impairment. We consult Forum Members for advice and guidance on different projects and issues.
Deaf and hearing working together in Tyne and Wear, breaking down the barriers that Deaf or hearing impaired people face in our society. This includes training, British Sign Language (BSL) interpretation, Support and general advice and guidance.
Our Access and Inclusion Service can help with essential information and guidance on a range of statutory areas including:
Providing services for people living with hearing loss and their families and carers.
Hearing Link works with and on behalf of adults living with hearing loss, and their relatives, friends and colleagues. Our focus is on the social and psychological needs of people affected by hearing loss, rather than the medical, audiological or technical aspects of hearing impairment.
Come along to these friendly coffee mornings. These are for parents and carers of children with Special Educational Needs and Disabilities. Have a nice cup of tea or coffee, and chat with other parents. You can also find out about what support is available in Newcastle.
There are several coffee mornings that take place once a month in Newcastle.
Note: We will update the list below once the next dates have been shared. You can also keep an eye on the Facebook page (linked below) for any new dates.
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Living Made Easy is brought to you by the DLF, the charity previously known as the Disabled Living Foundation. Since 1969 the DLF has been providing free impartial advice and information on solutions, gadgets, adaptations and aids to make life easier. We are continuing our mission to maximise your lifestyle, adding life to years through practical advice.
We are a passionate and caring Deaf-led team working towards a future where there are no barriers to good health and wellbeing for Deaf people. We partner with the NHS and service providers across the country. We are one of the UK’s largest employers of Deaf people, and most hearing staff in our projects and services are fluent sign language users. We have a page about the support we can give to young people. Check it out here: Are you a deaf young person? - SignHealth
info@signhealth.org.uk, da@signhealth.org.uk
Text or WhatsApp/Facetime 07970 350 366 or text 88802 with the message 121SIGN, 020 3947 2601
Disabled Children’s RegisterBy law we are required to keep a Disabled Children’s Register. We use it to help us improve services now and in the future. By being on the register you will be kept informed of what services are available and how you can get involved if you want to. Joining the register is voluntary but if you register your child we will:
disabled.childrens.register@newcastle.gov.uk
Chapel Mediation and Consultancy Services provides specialist services to Local Authorities, Academy Schools, Maintained Schools, Services and Charities. I have 23 years experience working in the area of Special Educational Needs working with families, schools and Local Authorities to ensure children and young people have the support they need in order to progress. I have also undertaken the NEPPS Education Law Programme.
suehall113@gmail.com
07792227526
Youth Link Newcastle is for young people living with a disability or additional needs. It matches young people to a peer mentor. They can help with working towards a goal and overcoming challenges. The service is available to young people living in a Newcastle Postcode, aged from 11 to 18. Some examples of how a peer mentor could help you include:
sen.referrals@children-ne.org.uk
0191 256 2444
The CAN project helps 16-25 year olds from Newcastle and Gateshead who may require support to transition into adulthood or make steps towards improving their confidence and reducing isolation. CAN aim to support young adults to overcome any barriers affecting them to move forward in their lives. A mentor programme with a difference, it connects them with someone who can provide assistance tailored to their needs and ambitions. In the past, the programme has helped young people to:
communities-cowgate@children-ne.org.uk
0191 256 2444
Disability North is a registered charity (no. 514733) promoting inclusion, independence and choice for disabled people and their families by providing information, advice and support on any aspect of disability. Services are also provided for students or professionals working in the statutory, voluntary and the public sector.
reception@disabilitynorth.org.uk
0191 2840480
Newcastle Parent Carer Forum (PCF) are a group of volunteer parents and carers who work in partnership with Newcastle Local Authority, Health, Education and Social Care providers to make sure that the services they deliver meet the needs of children, young people and their families. We aim to act as “the voice” of Newcastle’s parents and carers of children and young people with Special Educational Needs and Disabilities (SEND).
contact@newcastlepcf.co.uk
Does your child have a special educational need or disability? Come to our support group. It’s a friendly place for parents and carers to chat and get advice.
This group meets on the first Monday of every month. No need to book - just turn up.
nesscb@actionforchildren.org.uk
0191 211 5773
Join our friendship mentoring programme and get access to the following support:
To find out more call 0191 231 4327 or email info@friendsaction.co.uk
info@friendsaction.co.uk
0191 231 4327
A course to help parents/carers manage the behaviour of people with learning disabilities and/or autism. It will help you understand their behaviour and ways to support them. Find out more about Positive Behaviour Support here: Positive Behavioural Support For more information about this course, call 0191 281 8737 or email information@skillsforpeople.org.uk.
information@skillsforpeople.org.uk
0191 281 8737
For parents/carers of children who are on the diagnostic pathway or post diagnosis of Autism. Children must be living in Newcastle.
Supporting your autistic child workshop These sessions will cover:
We have the following dates available:
rebecca.weatherstone@ne-as.org.uk
0191 410 9974
Useful Vision is a service for visually impaired children around the North East. We provide positive opportunities and jam-packed events. Our support for children and families helps them to flourish. Our activities and services can help children learn new skills and make new friends – reducing social isolation through increased confidence and self-esteem. You can register your child for support from Useful Vision and to be able to attend events.
usefulvision@hwn.org.uk
0191 264 1959
Contact is the UK charity for families with disabled children. They support families, bring families together and help families take action for others. They give support through:
0808 808 3555
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